SAVE THE DATE: Canadian Association of PNH Patients – Toronto Meeting

SAVE THE DATE! The Canadian Association of PNH Patients invites the Canadian community of patients and caregivers to join us on Saturday, April 11, 2015 for our next meeting. We are pleased to announce that our next meeting for Canadian patients and caregivers will be held in Toronto on Saturday, April 11, 2015. In October […]

INVITATION: Canadian Association of PNH Patients – Vancouver Meeting

We are pleased to formally invite you to our first meeting for patients and caregivers in B.C. on Saturday, October 25, 2014, from 9:00 a.m – 3:00 p.m., in Vancouver. We have planned the day with you, the patient and your family, in mind! Our goal is to continually provide educational resources to help support patients, families […]

Invitation to AAMAC Advocacy Workshops (Alberta)

The Aplastic Anemia and Myelodysplasia Association of Canada (AAMAC) is hosting advocacy workshops in Calgary and Edmonton this June 2014. The sessions, entitled “Putting Words into Action,” will aim to help individuals learn how to become advocates. The workshops are being held in conjunction with local multiple myeloma support groups and will be led by academic, […]

Meeting & rally for rare disease patients in Quebec (RQMO)

On Saturday, March 1, 2014, the RQMO (Quebec Coalition of Orphan Diseases) is holding a rally event in Montreal in recognition of International Rare Disease Day. 1 p.m. Meet at Léo-Pariseau Park (corner of Des Pins Avenue and Parc Avenue) 1:30 p.m. Walk to the Clinical Research Institute of Montreal (IRCM) 110 Pins Avenue West […]

AAMAC Montreal Support Group Meeting

AAMAC (Aplastic Anemia and Myelodysplasia Association of Canada) invites the Quebec PNH community to join their annual Montreal Support Group Meeting. The event will take place on Saturday, February 22, 2014 from 9:30 a.m. to noon at the Institut de tourisme et d’hôtellerie du Québec, 3535, rue Saint-Denis. Christiane Caza, a social worker and parent […]

AAMAC Patient Education Day

The Aplastic Anemia and Myelodysplasia Association of Canada has an exciting day planned for aplastic anemia, myelodysplastic syndrome (MDS, myelodysplasia) and PNH patients, family and healthcare professionals. Patient Education Day Saturday, October 19, 2013 8:00 a.m. to 4:00 p.m. Hotel de l’institute 3535, rue Saint-Denis Montreal, Quebec 1-855-229-8189 PLEASE REGISTER FOR THIS FREE CONFERENCE BY TUESDAY, […]