The Canadian PNH Support Group is a closed group that is managed by the Canadian Association of PNH Patients, which contains information for PNH patients and caregivers only, and exists to facilitate dialogue between members of the Canadian PNH community. Please feel free to share your thoughts, experiences and stories, as well as engage in […]
PMPRB Advocacy Update – Open Letter to Prime Minister Justin Trudeau & other decision makers urging them to put our lives first!
As we wrap up a year that has brought many unprecedented challenges to Canadians, and especially those already facing health challenges, we are also coming to the end of our hard-fought campaign against reforms to drug pricing in Canada. Thank you to so many within our PNH family and extended families for participating in the #stopPMPRBnow advocacy campaign. […]
NEWS RELEASE: Federal Government Must Delay Drug Pricing Reform to Safeguard Patient Lives During COVID-19
Toronto Star: “They’ve put a price on a human life” – November 20, 2010 Toronto Star: “‘Time is of the essence’ for victims of rare blood disorder” – November 22, 2010 Guelph Mercury: “Patients denied life-saving drugs” – November 20, 2010 Toronto Star: “‘We’re at a crossroads’” – November 23, 2010 Guelph Mercury: “Province urged […]
CTV/CKCO News Kitchener: November 20, 2010 (available here) A-Channel News London: November 22, 2010 (available here) AM 980 News/CFPL-AM: November 24, 2010 CTV/CKCO News Kitchener: November 24, 2010 (available here) A-Channel News London: November 24, 2010 (available here) CTV/CKCO News Kitchener: December 3, 2010 (available here) TVA ARGENT LCN Le Matin: December 23, 2010 CJAD NewsTalk […]
Thestar.com: “Dying patients ask: Where are the $1 billion in drug savings?” – November 19, 2010 Healthzone (The Toronto Star): “Dying patients ask: Where are the $1 billion in drug savings?” – November 19, 2010 Singtao: November 20, 2010 CTV Southwestern Ontario: “Wellington County man will die without help from gov’t, says family” – November […]