Carrie Richards – Southern Ontario
My name is Carrie Richards and I am from Southern Ontario. When I was 18, I was diagnosed with a rare blood disorder, called Aplastic Anemia. I didn’t know it at the time, but that was just the beginning of my journey with rare diseases. After a while of living with crippling fatigue and enduring regular […]
Alexion Steps Up to Help Keep PNH Patients Safe
Patients who are part of the OneSource program and rely on public transit can now take a reimbursed ridesharing/taxi service to and from the infusion clinic where they receive their eculizumab treatments. Alexion Canada (the manufacturer of eculizumab) hopes this service will help alleviate any concerns patients may have regarding taking public transit when travelling […]
#FIGHTforourLIVES
Fight for Our Lives!
Changes to Canada’s Drug Pricing Guidelines Will Hit Rare Disease Patients Hardest
WordPress Resources at SiteGround
WordPress is an award-winning web software, used by millions of webmasters worldwide for building their website or blog. SiteGround is proud to host this particular WordPress installation and provide users with multiple resources to facilitate the management of their WP websites: Expert WordPress Hosting SiteGround provides superior WordPress hosting focused on speed, security and customer […]