Meeting & rally for rare disease patients in Quebec (RQMO)

On Saturday, March 1, 2014, the RQMO (Quebec Coalition of Orphan Diseases) is holding a rally event in Montreal in recognition of International Rare Disease Day.

1 p.m.
Meet at Léo-Pariseau Park (corner of Des Pins Avenue and Parc Avenue)

1:30 p.m.
Walk to the Clinical Research Institute of Montreal (IRCM)
110 Pins Avenue West (corner of Des Pins Avenue and St-Urbain Street)

2 p.m.
Speakers and stories from people with rare diseases, with snacks provided

  • Dr. Yves Berthiaume, Scientific Director at the IRCM, will speak about rare disease research at IRCM
  • Gail Ouellette, director of RQMO, will speak about the state of rare diseases in Quebec

3-4 p.m.
Time for questions and discussion

Please register by sending an email to Be sure to include the number of people attending with you.