SAVE THE DATE: Canadian Association of PNH Patients – Toronto Meeting


The Canadian Association of PNH Patients invites the Canadian community of patients and caregivers to join us on Saturday, April 11, 2015 for our next meeting.

We are pleased to announce that our next meeting for Canadian patients and caregivers will be held
in Toronto on Saturday, April 11, 2015. In October 2014, we held a similar meeting in Vancouver for families in B.C., and for this upcoming meeting, we would like to extend an invitation to those in other parts of the country.

This informative and educational meeting will feature insights and presentations by a local PNH specialist, and information and discussion inspired by our Guide to Living Well with PNH. Discussion topics will include the physical, mental and emotional journey with PNH, and individual experiences living with the condition.

There will also be a discussion on provincial access to PNH treatment, and guidance for participants on how to advocate for the best available care, with a goal of ensuring that PNH patients across Canada continue to have access to life-saving PNH medication. We strongly urge patients to attend with a caregiver or family member in order to optimize your experience at this meeting.

Suspect PNH? Recently diagnosed? Living well with PNH for years?

Having trouble accessing treatment?

This meeting will have something for everyone.

Thinking of attending?

Requests for travel subsidies will be considered. Please send an email at to make your request if you are considering attending.

How do I register?

Watch our website ( for more on how to register for this informative session.

The Canadian Association of PNH Patients was formed in 2009 with a mission to connect Canadians affected by Paroxysmal Nocturnal Hemoglobinuria (PNH) and advocate for the best possible care for patients, and ensure they are equipped with the most current tools and information to help them live well with the condition.

Kind regards,

Barry Katsof
Canadian Association of PNH Patients