A statement from the Minister of Health outlined a big win for the PMPRB community. 2 of the 3 proposed changes were removed by the Health Minister and only the comparative countries were changed.
The Canadian Association of PNH Patients is a not-for-profit Canadian organization formed in 2009. The mission of the organization is to connect Canadians affected by Paroxysmal Nocturnal Haemoglobinuria and advocate for the best possible care for patients and ensure they are equipped with the most current tools and information to help them live well with the condition.
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