Canadian Association of PNH Patients Launches #stopPMPRBnow Advocacy Campaign

On October 1, 2020, the Canadian Association of PNH Patients officially launched its #stopPMPRBnow advocacy campaign due to concerns regarding the proposed amendments to the Regulations governing the Patented Medicine Prices Review Board (PMPRB) set to come into effect on January 1, 2021

Those living with rare diseases – including PNHcannot accept that lives continue to be put at risk by the uncertainty generated by the PMPRB reform process to date. 

Join our #stopPMPRBnow campaign to urge the federal government to put a stop to the proposed PMPRB reform until we can be certain that the lives of Canadians won’t be put at further and unnecessary risk.

To find out how you can get involved and make your voice heard to #stopPMPRBnow, contact us at or click here to take action!