March 1, 2013

This past Wednesday, February 27, the Canadian Organization for Rare Disorders held their Rare Disease Day Awards Gala Celebration. The Canadian Association of PNH Patients is happy to report that our founder and president, Barry Katsof, was recognized as a rare hero for his contributions to the rare disease community in Canada.

Along with four other individuals, Barry was recognized with a special certificate for his efforts on behalf of PNH patients across Canada.

Congratulations, Barry!

Click here to read CORD’s full press release on the event.