A company that is developing a new treatment for PNH has created an online patient survey to help the company better understand the experiences, perspectives, and unmet needs of Canadian PNH patients. The Canadian Association of PNH Patients has been asked to contact patients across the country to respond to this survey.
If you choose to participate in this 10-15 minute survey, your responses will be COMPLETELY anonymous, and will only be used to inform the company of how to develop the new PNH therapy to best meet the needs of the community.
We invite patients of all ages, regions and walks of life to contribute to this research, no matter the nature of their PNH journey.
If you are interested in responding to this survey, please click on the link with your preferred language below:
The Canadian Association of PNH Patients thanks you for taking the time to share your perspective.