New National Strategy Improves Access to Affordable and Effective Drugs for Rare Diseases
On March 22, the Honourable Jean-Yves Duclos, Minister of Health, announced a new strategy to improve access to affordable and effective drugs for Canadians with rare diseases. The new measures will increase access to, and the affordability of, effective drugs for rare diseases, marked by an investment of up to $1.5 billion across three years. It is highly welcome news for those living with a rare disease, including Paroxysmal Nocturnal Haemoglobinuria (PNH), and their support systems. In Canada, one out of every 12 people has a rare disease, and the effects of these diagnoses are felt not only among patients