List of Canadian PNH Doctors
The following doctors are Canadian, board certified hematologists with experience in managing patients diagnosed with PNH. The information below is provided for informational purposes only. Please consult with your medical practitioner for further information regarding your personal circumstances.
Dr. Tom Nevill
Vancouver General Hospital
Vancouver, B.C.
Phone: 604 875 4863
Dr. Loree Larratt
University of Alberta
Edmonton, AB
Phone: 780-407-1584
Dr. Ian Chin-Yee
London Health Sciences Centre
London, Ontario
Phone: 519 685 8479
Dr. Brian Leber
Juravinski Hospital
Hamilton, ON
Phone: 905-389-4411 ext. 76384
Fax: 905-575-6316
Dr. Richard Wells
Sunnybrook Health Sciences Centre
Toronto, ON
Phone: 416-480-4757
Dr. Mitchell Sabloff
The Ottawa Hospital – General Campus
Ottawa, ON
Phone: 613-737-8899 ext. 71284
Fax: 613-737-8861
Dr. Christopher Patriquin
Toronto General Hospital / University Health Network
Toronto, ON
Phone: 416-340-3999
Dr. Danièle Marceau
CHUQ-Hotel-Dieu de Québec
Quebec City, Quebec
Phone: 418-691-5225
Dr. Stephen Caplan
Jewish General Hospital
Montreal, Quebec
Phone: 514-340-8207
Dr. Catherine Sperlich
Hôpital Charles LeMoyne
Greenfield Park, Quebec
Phone: 450-466-5065
Fax: 450-466-5066
Dr. Thomas Kiss
Hôpital Maisonneuve-Rosemont
Montreal, Quebec
Hematology Secretariat: 514-252-3404
Fax: 514-254-5094
Dr. Sue K. Robinson
Queen Elizabeth II Health Sciences Centre
Halifax, Nova Scotia
Phone: 902-473-2394
Dr. Kuljit Grewal
The General Hospital
St. John’s, Newfoundland and Labrador
Phone: 709-777-7061
Financial Support
The Canadian Association of PNH Patients strives to assist patients in accessing the best possible care and treatment to help them live well with the disease. The resources below are provided to help Canadian PNH patients secure access to treatment with eculizumab.
OneSource Patient Support
1-888-765-4747
If you are considering eculizumab, or are already on treatment, we recommend connecting with OneSource™ at 1-888-765-4747. A OneSource nurse case manager will help you navigate insurance or funding issues for eculizumab, and determine with your doctor whether or not you are eligible for eculizumab through your private insurance plan or government insurance program.
Your OneSource nurse case manager will also answer any questions about eculizumab infusions you may have, as well as provide ongoing support.
Provincial Drug Plans
Eligibility criteria for public funding for eculizumab may vary from province to province. For information on your province’s drug program, click on the appropriate link below.
We hope you enjoy these issues of the PNH Review – the newsletter of the Canadian Association of PNH Patients!
Useful Links
CORD – Canadian Organization for Rare Disorders
RQMO – Le Regroupement Québécois des Maladies Orphelines
AAMAC – Aplastic Anemia and Myelodysplasia Association of Canada
OneSource Treatment Support – 1-888-765-4747
PNH Support Group – An Online Support Community
International PNH Interest Group
PNHSAA – PNH Support Association of Australia Inc. (Australia)
European Network for Rare and Congenital Anaemias (ENERCA)
EURORDIS – Rare Diseases Europe
Association HPN France – Aplasie Médullaire (France)
Aplastische Anämie – PNH (Germany)
Aplastische Anämie e.V. (Germany)
HematosLife – A rare blood disease community (Netherlands)
Stichting AA & PNH Contactgroep (Netherlands)
PNH Support Association of NZ (New Zealand)
Slovensko združenje bolnikov z limfomom in levkemijo (Slovenia)
Asociación de hemoglobinuria paroxística nocturna (Spain)
AIEPN – Associazione Italiana Emoglobinuria Parossistica Notturna (Italy)
PNH National Service (U.K.)
PNH Support (U.K.)