List of Canadian PNH Doctors

The following doctors are Canadian, board certified hematologists with experience in managing patients diagnosed with PNH.  The information below is provided for informational purposes only. Please consult with your medical practitioner for further information regarding your personal circumstances.

Financial Support

The Canadian Association of PNH Patients strives to assist patients in accessing the best possible care and treatment to help them live well with the disease. The resources below are provided to help Canadian PNH patients secure access to treatment with eculizumab.

OneSource Patient Support
1-888-765-4747

If you are considering eculizumab, or are already on treatment, we recommend connecting with OneSource™ at 1-888-765-4747. A OneSource nurse case manager will help you navigate insurance or funding issues for eculizumab, and determine with your doctor whether or not you are eligible for eculizumab through your private insurance plan or government insurance program.

Your OneSource nurse case manager will also answer any questions about eculizumab infusions you may have, as well as provide ongoing support.

Provincial Drug Plans

Eligibility criteria for public funding for eculizumab may vary from province to province. For information on your province’s drug program, click on the appropriate link below.

 

We hope you enjoy these issues of the PNH Review – the newsletter of the Canadian Association of PNH Patients!

Useful Links

Though PNH affects a relatively small number of patients, strong patient communities have formed around the world with the same goal of advocating for access to life-saving treatments and raising awareness for rare conditions. Patients are banding together in Canada as well as internationally to raise awareness for PNH among the general public and members of government.
 
Click on the links below to visit the web sites of these Canadian and international organizations, and help build a network of connected and engaged patients and caregivers.